Pure Imagination

I’ve often talked here about the future, the uncertainty of it and the fear of that unknown. I’ve had cause recently to think about the past. I was completely stunned and delighted this week to find out that this blog has been shortlisted for a MAD Blog Award. One of the things that surprised me was that I found myself immediately self-conscious about people actually reading it!! When I first started blogging it was for cathartic reasons. It helped me to commit to record somewhere, what was happening to us when we were first coming to terms with having a baby with life limiting disabilities. It helped me to organise my own thoughts by explaining them to others. Since then the blog has grown with us. Hosting the stories of achievement, heartache, frustration and utter joy which have unfolded along the way. Until this week I had never sat down and read it from the beginning.

Once I had got past the fact that my use of apostrophes is truly terrifying (and my word don’t I use a lot of brackets), I got lost in the memories. It’s amazing how easy it is to forget what we were told at the start of our journey and what we expected of Mojo’s life. It’s surreal to go back to a time when we were just starting to work with Physio and Portage and all of Mojo’s abilities were just hiding there waiting to be discovered. A time when communication with her was very much a one way street lined with instinct and guess work.

I laughed out loud at the use of the term ‘Paediatrician brain experts’ in my first ever post because these days I can rattle off diagnoses, stats, medications, doses, test results and clinicians like an extra on Grey’s Anatomy and I’ve caught one doctor using Wikipedia to confirm what I’ve told him (a non-Neurology specialist in A&E before you worry too much, but it did happen!).

Then while I was reading, Mojo, who was sitting beside me watching Willy Wonka and the Chocolate Factory (original version) started swaying along to ‘Pure Imagination’ and I was hit head on by a suddenly vivid memory that I didn’t know was there.

The day after Mojo was born, when all the family, nurses, doctors, students, cleaners and passing dignitaries who had been in to marvel at the miracle baby had gone and even my husband had gone home to get some sleep. It was just me and Mojo for the first time. We were in a side room completely alone and we stared at each other silently. After a while she started to cry and knowing that she was fed and clean I was out of ideas as to what to do. I reached for my pre-baby playlist on my phone and lovely Alfie Boe sang ‘Pure Imagination’ to us both and Mojo stopped crying. I played it again and again and again that night, until my battery died. How could I have forgotten about that for this long?

‘Anything you want to, do it.
Want to change the world?
There’s nothing to it.’

The final thing that was very evident during my indulgent retrospective reading was my pride in her. I am always proud of Mojo, I am proud every single day of her determination, her strength, her achievements, her capacity for love and her bloody hard work. I would have been proud of her even had she never hit a single milestone. I am proud of her simply for being her. This week though, embarrassed as I am to admit, I have allowed myself to be a bit proud of that terrified woman in August 2011 who reached for her computer and started to write.

Image with thanks to the fabulous Mel Wilde Photography


9 thoughts on “Pure Imagination”

  1. Voted, for you naturally 😉
    I've been following your blog since I came across to from Heidi's Storm in a Tit Cup.
    Chocolate Factory definitely best in its original form, and I'm glad to hear that rereading your blog showed you just how far you've come and what an amazing family you are.

  2. Thanks for your whole work on this website. My niece takes pleasure in working on research and it is simple to grasp why. We all notice all relating to the powerful ways you render vital tricks via your website and in addition recommend response from the others on this subject then our own princess is undoubtedly studying a whole lot. Take pleasure in the rest of the year. You have been performing a terrific job.

  3. I am glad for writing to make you know what a magnificent encounter my wife’s girl had studying your web site. She mastered several pieces, which include what it’s like to possess an awesome helping nature to let other individuals very easily know precisely some multifaceted subject matter. You truly exceeded people’s expectations. Thank you for presenting these powerful, trusted, informative and in addition fun tips about this topic to Kate.

  4. I am just writing to make you understand what a perfect experience my wife’s princess obtained using your webblog. She noticed some things, which included what it is like to possess an excellent teaching spirit to make others with no trouble learn about specific specialized things. You undoubtedly surpassed readers’ expected results. Thanks for providing those productive, trusted, informative as well as unique tips on your topic to Mary.

  5. My husband and i ended up being cheerful Albert could carry out his analysis because of the ideas he acquired from your blog. It’s not at all simplistic just to always be freely giving facts a number of people could have been making money from. And now we acknowledge we’ve got the blog owner to appreciate because of that. All of the explanations you’ve made, the easy blog menu, the friendships you aid to create – it’s all amazing, and it’s aiding our son and our family believe that that article is amusing, and that’s especially essential. Many thanks for all!

  6. I simply wished to thank you very much yet again. I do not know what I would have used without those tips and hints shown by you relating to this theme. This has been the traumatic setting in my view, nevertheless viewing your well-written way you treated the issue took me to weep with joy. Now i am thankful for your work as well as wish you recognize what an amazing job your are undertaking training the others with the aid of your website. Probably you haven’t met any of us.

  7. Thank you for every one of your labor on this web site. My daughter really loves making time for investigations and it’s really obvious why. Most people learn all regarding the lively mode you present reliable tactics through this web site and even inspire participation from some others on the point then our favorite princess is now starting to learn a whole lot. Take advantage of the rest of the year. You are always doing a remarkable job.

  8. I precisely desired to say thanks again. I’m not certain the things I could possibly have carried out in the absence of the concepts discussed by you concerning my area of interest. Entirely was a daunting circumstance for me, but coming across a expert avenue you handled it made me to leap over gladness. I am just happy for this information and in addition hope that you know what a great job you are always getting into teaching people thru your web blog. More than likely you have never got to know any of us.


Leave a comment