Hi, thanks for dropping by to find out a bit more about me!
To cover the basics, I’m Lizzie, mother of two spectacular girls, one with complex disabilities and one with very red hair, not that I equate those two things you understand, but it never fails to amuse me how much more fuss gets made about the red hair than the wheelchair!
I once held down a glamourous (notsomuch) job in Event Management where I genuinely lost sleep about per head drinks allocations, cloakrooms and chair covers.
A few days after I first found out that the baby I was carrying had a life-limiting condition I sat at my computer and started to write. It was cathartic, it was therapeutic and I didn’t think much of it, but then I continued writing and people started to talk to me about what I was writing and following our story.
Six years later and I’m still writing but my gaze has moved up a little and rather than simply documenting our life I’m now writing about things that matter most to families living with a disabled child. My aim is to offer an insight into the realities of daily life and offer the benefit of a first hand account to anyone who may be able to use one.
I’ve been very fortunate to have the chance to be an advocate for families like ours by working with some amazing charities. I’ve spoken about our experiences at fundraisers and presented our story at a conference for care professionals.
I’m always keen to get involved so please don’t hesitate to contact me here with any opportunities or questions.
I was really proud to be interviewed by The Sunday Times regarding financial struggles for parents facing a full time career role. Article Link: Caring for your seriously ill child is so hard, then the bills come in
Read my Mumsnet Guest Post in the wake of the Zika Crisis: My baby has Microcephaly, but she’s not defective.