Today however is not about that. Or at least it’s not about rehashing and reliving that. Today it’s about recognising how far we have come. It is remarkably easy to forget, to become focussed on the problems of daily life and the barriers Mojo faces. Reminding myself of what we (like all of the friends we have since met who experienced the same diagnosis meeting) were told about our unborn baby, brings into very sharp focus quite how truly completely and spectacularly awesome our little girl is.
So in the spirit of a picture saying a thousand words (believe me I could!) here is my nod to this year’s diagnosis anniversary using the words of the consultant in that first diagnosis meeting.
“It is very unlikely that your baby will survive to term”
“If it does it will have little or no quality of life”
“It is unlikely your baby would be able to perform basic functions such as breathing and swallowing”
“The front of the brain is where we store our personality and your baby’s fore brain is completely fused seriously damaging all the faculties we store there”
and finally, as I have to say I really did like our consultant and he wasn’t being intentionally completely wrong….
“Of course there are sometimes miracles…”
Thankfully for us the only element of the whole meeting which turned out to be accurate was the bit about miracles. Our amazing girl. Our miracle.