The Sun Will Come Up “…and if you can just sign here to say that I have advised you that if anything goes wrong we will do everything we can to save her life” The casual nonchalance with which you can accept a sentence of that magnitude is quite alarming and yet I did and duly signed my (or her) life away. I … Read More
It’s that back to school time again when despite that fact that it’s been 15 years since I left school I am overwhelmed by the desire to buy stationery and new shoes. I love September it feels so full of promise, potential and fresh starts, exactly how we are supposed to feel about spring?! The … Read More
So here we are again, 2nd August. Diagnosis Day. Today marks two years since I sat at the table in our old flat and wrote down semi lowbar hollow prosenkefaly. That’s exactly how I wrote it, whilst in my best telephone voice agreeing to come and meet the doctor the following morning to discuss our … Read More
“Are you okay?” “Yeah, I’m fine” I was being asked by the A&E doctor who was treating Mojo early on Monday morning as she lay writhing in apparent pain, pouring with sweat and screaming. I wasn’t fine. Mojo was very unwell indeed following a brief and violent tummy bug and we were here again, to do battle with her sodium … Read More
Painting with my Granny & my Cousin I had a strange experience this week. I found myself sincerely worrying about something that had not yet happened and, were it to happen, would cause me, at worst, minor inconvenience and irritation. In short, I was worrying about something completely insignificant. It was only when the … Read More
There is something fundamentally emotive about music. It’s well known that babies respond to music in the womb. There is just something about a beat and a melody which captures us. The right song at the right time can evoke tremendously strong emotions. I’ve always been a fan of sound tracking my life. Anyone who lived … Read More
I sometimes worry that my blog posts are a bit like those sympathy-vote back stories they do for X-Factor contestants. Not least because I find myself thinking of words like ‘rollercoaster’ and ‘journey’. Inescapable really but do feel free to pick me up on any excessive superlatives as I continue to keep you all updated. The last … Read More
FTT is an acronym which has appeared on many a note about our girl and it stands for Failure To Thrive. There are many many MANY things I hate about the term. Dealing with the obvious one first, it can’t be a good thing, right? Everyone wants their children to thrive. The thing that gets me … Read More
Back in the darkest days of our pregnancy I used to daydream about our baby, how she would be the exception to the rule and she would survive. If I allowed myself, I would imagine her coming home with us and being with us for Christmas. If I was getting really carried away I would … Read More
If today is the day that you get news which rocks the foundations of your world, if you find yourself dizzy with horror at how you will continue to function, then your today, is my yesterday or, more acurately, my one year ago today. In honesty I had forgotten that I’d started this blog almost … Read More
