New Year, New House, New Thinking

Exactly ten years ago on New Year’s Eve my sister arranged VIP tickets for us at a club. We were set up with Champagne, space, a free bar and all the necessary celebratory décor. We were having a fabulous time and it was approaching midnight when a conversation struck up that maybe we should be on the … Read More

Mojo’s Adventures – Filming for CBeebies!

Back in April we had a letter home from school. A CBeebies production team were coming into school to do some auditions for a new language-based TV show. It was essentially just games and dancing and fun and you were given the option to opt your child out. Now while I know a lot of … Read More

An alternative Christmas ad!

Picture the scene. Slow tempo Christmas music plays in the background. Sparkly Christmas lights reflect in the wide eyes of a six year old girl in the toy department of a large department store. Children around her look excitedly at the toys, pointing and chatting. The camera cuts to a wide shot which shows the … Read More

Caring on Empty

I just don’t think I’m coping very well, I said. Then I cried. Sitting in the GPs office back in August I described to the doctor how the physical symptoms of my anxiety, the heart racing, the dizzy spells, the nausea had started to frighten me. It was making me question my ability to look … Read More

Where The Heart Is

Today we put our house on the market. The house that has been our first family home. The house we have spent 5 chaotic, happy, laughter-filled, anxiety ridden years. I still have the details of the house from when we bought it. I maintain that I knew it was ‘the one’ before we’d even seen inside it. … Read More

Center Parcs Woburn

We have been going to Center Parcs every year since Mojo was born. It was the first ever family holiday we went on. I have so many vivid memories of our time there over the years, amazing highs, like the first time Mojo went swimming and the occassional terrifying low, like the emergency run to … Read More

Autumn is Coming!

September has always been one of my favourite times of the year. I love the contrast between the ending of summer and the possibilities of a new academic year. For a start as a huge fan of stationery and new shoes it’s a win all round on the shopping front. I love autumn, I love … Read More

Starting Special School – My Top Tips

As milestones go, this one is pretty spectacular. The chances are that if you are at the point of starting a special school you have already won a number of battles to get you there. When our daughter started a special school two years ago I was thrilled and terrified in equal measure. Mojo was … Read More

Diagnosis Day – 6 years on

So it’s 2nd August. Today it’s exactly 6 years since we received Mojo’s diagnosis & we were told that that our baby could not expect any quality of life. This week back in 2011 I took refuge at my parents house. Propped against the wall that week, waiting to be hung up, was a picture … Read More

Somebody that I used to know

It’s a theme that often comes up when talking to parents; identity. It can be bewildering enough with typical parenting but when your child has disabilities it’s a pretty dramatic lifestyle change. When a life that you would never, could never, have planned for is thrust upon you it challenges your sense of identity deeply. Not … Read More