Today Mojo is 5 years old. Five years since we waited, braced, terrified, hopeful, to meet our baby. Five years since you waited seven minutes to take your first breath. Five years since we were wheeled down the corridor of the maternity ward to applause. Five years since the night I lay awake in a side room … Read More
My youngest is rarely mentioned in this blog but yesterday I wrote her a letter and today I wanted to share it with you because while I bang on endlessly about the amazingness of my big girl, her little sister is busy being quietly fabulous in the background. My darling baby girl, Today you are … Read More
Today is a big deal. Today is Mojo’s first day of school. It’s not so much the practicalities of her being away from me because she has attended the pre-school full time since last Christmas. In Mojo’s eyes she is just going back to school with a new classroom and a new teacher. I know different though. … Read More
Currently in my (not enormous) kitchen I have five modes of child transport. FIVE In fact of you count the old one hidden in a cupboard you could make that six. There is so little floor space that making a brew or reaching the bin involves a crystal maze-esque feat of physical agility. Still I can’t bring … Read More
One very normal Tuesday evening. Two adults and two children sat round a table and had dinner. They all ate, they all laughed, they all talked about their day. Not exactly ground-breaking family activity, right? But it was for us. There is something emotive about food. Nourishing your family. The association between food and love. Before Mojo had … Read More
Two things I hoped would never happen, happened this week. Firstly, I had my first ride in an ambulance and secondly I started a medical notes folder for my youngest daughter. The ambulance ride I always expected would happen one day. What I never considered was that it wouldn’t be Mojo I was cradling, but instead, my conventional, easy, healthy … Read More
Should you ever find yourself researching raising children with disabilities, one of the first things you are likely to come across is an article by Emily Perl Kingsley called Welcome to Holland. It’s very well known, widely reproduced and generally accepted as an appropriate analogy for the unexpectedly tangential lives parents with complex children lead. The … Read More
My head hurts. You know when you get to an age that hangovers last for three days and you are forced to adjust your boozing behaviours accordingly. A hospital hangover feels very much the same. Dehydration, exhaustion, nausea, dizziness and difficulty stringing a sentence together. There is also the added sense of injustice that all … Read More
When Mojo wakes up in the morning she cries, little sobs to start with gaining strength the longer it takes us to reach her. It’s quite heartbreaking sometimes. I commented to my husband that I hate how it takes her so long to wake up properly in the morning. He laughed. ‘She wakes up EXACTLY … Read More
